The National UK Turner Syndrome Register - recruiting patients

04 Sept 2012


Can you help to improve the follow-up of care for patients with Turner syndrome in the UK? The aim of the Turner Register is to monitor the provision of clinical care provided to young women with Turner syndrome aged 16 years and above during adult life. They are asking young women to join the Register and complete a simple annual questionnaire.

The study is being coordinated by the British Society for Paediatric Endocrinology and Diabetes Clinical Trials Audit Group (Principal Investigator: Professor David Dunger, Cambridge University).

Your help is needed to recruit patients aged 16 years and over. Patients attending paediatric and adult clinics can register themselves to the study. Clinicians are asked to display a poster advertising the register in their clinics. For more information, please phone: 01223 769386 or email: [email protected].


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