BiosciNews

Can you help to improve the follow-up of care for patients with Turner syndrome? The aim of the Turner register is to monitor the provision of clinical care provided to young women with Turner syndrome aged 16 years and above during adult life. We are asking young women to join the register and complete a simple annual questionnaire.

The study has REC approval: South West Research Ethics Committee (reference 03/6/075) and is being coordinated by the British Society for Paediatric Endocrinology and Diabetes Clinical Trials Group. The Principal Investigator is Professor David Dunger, Cambridge University.

Patients attending adult clinics can register themselves. For further information or if you are able to display a poster advertising the register in your clinics, please contact the Turner register at: [email protected] or telephone: 01223 769386.

The national Turner syndrome register

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