Survey into research gaps in paediatric endocrinology

The rare nature of many paediatric endocrine conditions poses challenges in conducting adequately powered research in single centres. The BSPED is a network of healthcare professionals aimed at improving outcomes for children with endocrine conditions through clinical practice, education and research. The BSPED Clinical Studies Group would like your help in surveying your views on research priorities. Our goal is to identify research priorities of unmet need, addressing a paediatric endocrinology problem that is sufficiently common that most UK centres would have an opportunity to participate, but one that is sufficiently rare that the workload at each centre would not be excessive.  

We are holding a workshop for patient support groups to discuss research priorities in September, and reporting back to our membership at our annual meeting in November. Your views will feed into this process. 

We will use a Delphi approach, as a systematic process to generate ideas and arrive at consensus in a large group. We would be grateful if you would kindly answer the following questions via this link:
https://goo.gl/forms/MzRa0vvHVlD7eXXS2

“In what disease or problem is there a significant unmet need that should be addressed in the first study?”

And, 

“What intervention should be studied to address this disease or problem?”

We will combine responses from this survey, and resend to you to indicate your top 10 choices that you would like to see worked up as proposals for our society. 

Here’s the link again for you to submit your answers: https://goo.gl/forms/MzRa0vvHVlD7eXXS2

Responses should be submitted by 13 August 2018.

With many thanks 

Timothy Barrett 
Leonard Parsons Professor of Paediatrics
Institute of Cancer and Genomic Sciences
College of Medical and Dental Sciences
University of Birmingham

Centre for Rare Disease Studies, Birmingham
Centre for Endocrinology, Diabetes and Metabolism
Honorary Consultant paediatric endocrinology and diabetes