Call for European Reference Networks

The call for the first European Reference Networks (ERNs) is anticipated in March 2016. The objectives of an ERN are to share expertise, improve diagnosis, educate and train patients, care providers and doctors, produce guidelines, build databases, develop connections to facilitate research, perform clinical trials on rare endocrine conditions, disseminate results to patients, health care providers (HCPs) and public health organisations, and link up with orther ERNs.

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ESPE views a European Reference Network for Rare Endocrine Conditions as vital for improving the care of people with the diverse range of rare conditions that present in childhood and are managed by ESPE members. From previous experience, it is clear that the outcomes of initiatives such as this will extend well beyond Europe. ESPE is looking to partner with Health Care Providers, whose objectives match those of the Society and who are considering applying to act as an ERN coordinator. At this critical stage, whilst groups are defining the structure of ERNs in the various disease areas, many clinicians and researchers are likely to value the opportunity of linking up with like-minded colleagues and consortia who might be interested in applying to set-up or join an ERN in the same disease field.

To register your interests and to get in touch with other ESPE members, we would advise you to visit www.rd-action.eu/european-reference-networks-erns/. ESPE has set up a short-life working group and those who are interested are advised to contact Peter Clayton, Secretary General.